Thursday, July 30, 2015
Saturday, February 2, 2013
Book
Maria's Blog was published in Japan.
Some materials from the interviews with her were incorporated so that it can be read like a story.
http://www.amazon.co.jp/フジテレビ-ザ・ノンフィクション-まりあのニューヨーク-死ぬまでに逢いたい人-フランキ・マリア・さわの/dp/4022510064
Some materials from the interviews with her were incorporated so that it can be read like a story.
フジテレビ ザ・ノンフィクション まりあのニューヨーク 死ぬまでに逢いたい人 [単行本]
フランキ・マリア・さわの (著)http://www.amazon.co.jp/フジテレビ-ザ・ノンフィクション-まりあのニューヨーク-死ぬまでに逢いたい人-フランキ・マリア・さわの/dp/4022510064
Thursday, October 27, 2011
Documentary
The documentary, Maria's New York, will be aired in Japan on Oct 30, 2011.
We loved you, Maria.
Rest in Peace.
We loved you, Maria.
Rest in Peace.
Saturday, October 1, 2011
October
In October last year, Maria needed a cane to walk with. She still didn't know she would not see leaves change colors this year.
Wednesday, September 7, 2011
September
In September last year, Maria started experiencing twitching of muscles in left extremities and having difficulty in walking in general.
She didn't have the slightest idea that she wouldn't see the next September.
Symptoms
http://www.alsa.org/about-als/symptoms.html
Initial Symptoms of the Disease
At the onset of ALS the symptoms may be so slight that they are frequently overlooked. With regard to the appearance of symptoms and the progression of the illness, the course of the disease may include the following:
The initial symptoms of ALS can be quite varied in different people. One person may experience tripping over carpet edges, another person may have trouble lifting and a third person's early symptom may be slurred speech. The rate at which ALS progresses can be quite variable from one person to another. Although the mean survival time with ALS is three to five years, many people live five, ten or more years. In a small number of people, ALS is known to remit or halt its progression, though there is no scientific understanding as to how and why this happens. Symptoms can begin in the muscles of speech, swallowing or in the hands, arms, legs or feet. Not all people with ALS experience the same symptoms or the same sequences or patterns of progression. But, progressive muscle weakness and paralysis are universally experienced.
Muscle weakness is a hallmark initial sign in ALS, occurring in approximately 60% of patients. Early symptoms vary with each individual, but usually include tripping, dropping things, abnormal fatigue of the arms and/or legs, slurred speech, muscle cramps and twitches and/or uncontrollable periods of laughing or crying.
The hands and feet may be affected first, causing difficulty in lifting, walking or using the hands for the activities of daily living such as dressing, washing and buttoning clothes.
As the weakening and paralysis continue to spread to the muscles of the trunk of the body the disease, eventually affects speech, swallowing, chewing and breathing. When the breathing muscles become affected, ultimately, the patient will need permanent ventilatory support in order to survive.
Since ALS attacks only motor neurons, the sense of sight, touch, hearing, taste and smell are not affected. For many people, muscles of the eyes and bladder are generally not affected.
Source: ALS Association
She didn't have the slightest idea that she wouldn't see the next September.
Symptoms
http://www.alsa.org/about-als/symptoms.html
Initial Symptoms of the Disease
At the onset of ALS the symptoms may be so slight that they are frequently overlooked. With regard to the appearance of symptoms and the progression of the illness, the course of the disease may include the following:
- muscle weakness in one or more of the following: hands, arms, legs or the muscles of speech,
- swallowing or breathing
- twitching (fasciculation) and cramping of muscles, especially those in the hands and feet
- impairment of the use of the arms and legs
- "thick speech" and difficulty in projecting the voice
- in more advanced stages, shortness of breath, difficulty in breathing and swallowing
The initial symptoms of ALS can be quite varied in different people. One person may experience tripping over carpet edges, another person may have trouble lifting and a third person's early symptom may be slurred speech. The rate at which ALS progresses can be quite variable from one person to another. Although the mean survival time with ALS is three to five years, many people live five, ten or more years. In a small number of people, ALS is known to remit or halt its progression, though there is no scientific understanding as to how and why this happens. Symptoms can begin in the muscles of speech, swallowing or in the hands, arms, legs or feet. Not all people with ALS experience the same symptoms or the same sequences or patterns of progression. But, progressive muscle weakness and paralysis are universally experienced.
Muscle weakness is a hallmark initial sign in ALS, occurring in approximately 60% of patients. Early symptoms vary with each individual, but usually include tripping, dropping things, abnormal fatigue of the arms and/or legs, slurred speech, muscle cramps and twitches and/or uncontrollable periods of laughing or crying.
The hands and feet may be affected first, causing difficulty in lifting, walking or using the hands for the activities of daily living such as dressing, washing and buttoning clothes.
As the weakening and paralysis continue to spread to the muscles of the trunk of the body the disease, eventually affects speech, swallowing, chewing and breathing. When the breathing muscles become affected, ultimately, the patient will need permanent ventilatory support in order to survive.
Since ALS attacks only motor neurons, the sense of sight, touch, hearing, taste and smell are not affected. For many people, muscles of the eyes and bladder are generally not affected.
Source: ALS Association
Tuesday, August 16, 2011
The Last August
About this time last year, Maria was having a difficulty to support herself with the left leg while climbing up and down stairs.
Monday, August 15, 2011
A Wonderful Poet
The following is a transcript of Mari's speech at the funeral service.
皆さんは、まりあさんのブログを読んでいらっしゃいましたでしょうか？
私は昨晩、もう一度1月から始まった彼女のブログを読んで見ました。
2月28日（月） 春の雨に
２本の足で歩いてた。 ニューヨークにもドイツにもカナダにも、バハマ諸島だって行っていた。
地球を歩く、ドンドンと。
スキー、スケート、シュノーケル。何でも挑戦、元気な子。
雨がつらつらと降るきさらぎの午後。静かにそっと目を閉じた。
元気な子が笑ってる。元気な子が走ってる。
雨の音が窓を打つ、大きく、激しく。
目を開けてみると、そこにはいつもの白い天井。
元気な子はもういない。元気な子は笑えない。
この宿命、どう受け入れよう。春の雨よ、教えておくれ。
3月14日（月）
天国で同窓会をしたら、
「まりあちゃんが一番しあわせものだよ」
って、まりちゃんが言う。
こんなに皆に愛されてさって。
そうかな、そうかも、わたしの心理はぐるぐる回る。
待ってるね、このお空のまっすぐ上でね。
5月24日（火） 入院11日目
目をつぶれば。そこは極楽。トンボが舞う。
そこは時間がない場所で。
大好きだった。ネコのラッキーにも会え。
緑の小川・そよ風が頬をなでる。
放たれた心は。愛を知り、愛を思う。
会えるんだ貴方に。
喜びの花々。舞う蝶ちょ。
まりあさんのブログを読んでいると何回も何回も「ありがとう」と感謝の言葉が出てきます。
辛くて読めないとおっしゃる方もいらっしゃるのですが、よく読んでみてあげてください。溢れる才能に驚かれるはずです。
まりあさんは素晴らしい詩人でした。
このあと、献花の際、流れる音楽はまりあさんの元ご主人のボブ・フランキーさんがピアノを演奏されています。
曲はバッハとグノーの「アヴェ・マリア」
この曲を何度も何度も繰り返し聞きながら、まりあさんは旅立たれました。穏やかな穏やかな旅立ちだったそうです。
まりあちゃん、今は緑の小川の流れる、時間のない世界で猫のラッキーやお父さんに会ってますか？
心よりご冥福をお祈り申し上げます。
by Mari
Have you been following Maria's blog?
Last night I went back to read the blog she started in January.
February 28th (Mon) Spring Rain
With two legs I walked.
I went to New York, Germany, Canada and Bahamas.
I traveled all over the world.
Ski, skate, snorkel.
I tried everything
Sprightly I was.
It's raining steadily in the afternoon of February.
I closed my eyes silently.
The sprightly me is laughing.
The sprightly me is running.
The rain was beating the window pane hard and loud.
I opened my eyes to see the same white ceiling.
The sprightly me is no more.
The sprightly me can't laugh.
How I could accept this fate
Tell me, spring rain.
March 14th (Mon)
If we have a reunion in the heaven,
"Maria, you would be the happiest one."
Mari said.
Loved by everybody.
Is that so? It could be so. My feelings went round and round.
I'll be waiting, up above the sky.
May 24 (Tue) Day 11 in Hospital
In the place of between, where time does not exist
My beloved cat, Lucky
Is waiting for me.
A green stream, a breeze caresses my cheeks.
My heart is released
Feeling love and reflecting on love
I will be reunited with you.
Flowers bloom with joy
Butterflies dance.
You would notice that Maria wrote again and again "Thank You" in her blog to express her gratitude. Some say it's too painful to read, but please read closely, you will be surprised by her talent.
Maria was a brilliant poet.
Maria departed listening to Ave Maria played by her ex-husband, Bob. I was told that it was a peaceful and serene departure.
Maria, are you reunited with your beloved cat Lucky and your father in the place where a green stream flows and time does not exist?
I pray for the repose of her soul from the bottom of my heart.
by Mari
Edited and translated by J. Ujiie
皆さんは、まりあさんのブログを読んでいらっしゃいましたでしょうか？
私は昨晩、もう一度1月から始まった彼女のブログを読んで見ました。
2月28日（月） 春の雨に
２本の足で歩いてた。 ニューヨークにもドイツにもカナダにも、バハマ諸島だって行っていた。
地球を歩く、ドンドンと。
スキー、スケート、シュノーケル。何でも挑戦、元気な子。
雨がつらつらと降るきさらぎの午後。静かにそっと目を閉じた。
元気な子が笑ってる。元気な子が走ってる。
雨の音が窓を打つ、大きく、激しく。
目を開けてみると、そこにはいつもの白い天井。
元気な子はもういない。元気な子は笑えない。
この宿命、どう受け入れよう。春の雨よ、教えておくれ。
3月14日（月）
天国で同窓会をしたら、
「まりあちゃんが一番しあわせものだよ」
って、まりちゃんが言う。
こんなに皆に愛されてさって。
そうかな、そうかも、わたしの心理はぐるぐる回る。
待ってるね、このお空のまっすぐ上でね。
5月24日（火） 入院11日目
目をつぶれば。そこは極楽。トンボが舞う。
そこは時間がない場所で。
大好きだった。ネコのラッキーにも会え。
緑の小川・そよ風が頬をなでる。
放たれた心は。愛を知り、愛を思う。
会えるんだ貴方に。
喜びの花々。舞う蝶ちょ。
まりあさんのブログを読んでいると何回も何回も「ありがとう」と感謝の言葉が出てきます。
辛くて読めないとおっしゃる方もいらっしゃるのですが、よく読んでみてあげてください。溢れる才能に驚かれるはずです。
まりあさんは素晴らしい詩人でした。
このあと、献花の際、流れる音楽はまりあさんの元ご主人のボブ・フランキーさんがピアノを演奏されています。
曲はバッハとグノーの「アヴェ・マリア」
この曲を何度も何度も繰り返し聞きながら、まりあさんは旅立たれました。穏やかな穏やかな旅立ちだったそうです。
まりあちゃん、今は緑の小川の流れる、時間のない世界で猫のラッキーやお父さんに会ってますか？
心よりご冥福をお祈り申し上げます。
by Mari
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